Every moment counts: Mark's story

Before his diagnosis Mark was a picture of health. A fit and active man who had recently retired, he spent over 15 years pushing himself in endurance sports such as running and cycling. In 2022, he completed a 14-day cycling challenge from the south of France, through the Alps, Geneva and up to Normandy.  

There were no symptoms. There were no signs. Nothing to suggest what was coming. 

In January 2023, a routine cholesterol test, prompted by a family history of heart problems, set off a change of events that would change everything. A text from his GP told him that his neutrophil count was low. A second test showed a further decline, but the result was questioned due to the short time between the tests. Six long weeks passed before a third test confirmed a further drop.  

Mark was referred to the Royal Devon and Exeter Hospital for a bone marrow biopsy. In July 2023, the diagnosis arrived: Myelodsplastic Syndrome (MDS), a type of blood cancer. 

“It was a complete shock.” remembers Mark. “I felt completely fine. There were no signs I was unwell.” 

He faced a harrowing few weeks. Another biopsy was required before treatment could begin, with every day waiting adding to the stress. 

Treatment began in August 2023 with five weeks of intensive chemotherapy on Yarty Ward. After being discharged, another biopsy revealed that the cancer was still present, so a second, shorter round of chemotherapy followed. Mark then underwent blood transfusions and regular check-ups as the search for a stem cell match began. 

Although his sisters were a match, neither could be used as a donor. A match was finally found in late 2023. Finally Mark admitted to Derriford Hospital in January 2024 following a three week delay, caused by the donor having low iron levels. 

He spent four weeks in hospital recovering and then began a rigorous schedule of check-ups, three times a week. Thankfully, there were no complications following the transplant. 

Now, 17 months later, Mark is looking forward to doing what he loves. He’s back on his bike and recently took part in a charity cycle to raise money for ELF, raising an incredible £1,700. He also joined a leg of Nikki’s Land’s End to John O’Groats cycle ride, (Nikki is one of the nurses who supported him through his treatment). He is even planning to take on the mighty Mount Ventoux next. 

Mark still remains cautious in his recovery, avoiding large crowds and spending less time in church in person. However, his journey has served to improve his prayer life  and deepen his religious faith. 

Reflecting on his journey Mark simply “feels blessed to be here.”